The Greater Hartford Association for Retarded Citizens, Inc

Home Harc Facts Datos en Español Volunteering New Parents Rec. Calendar Publications Legislative News

Community/Family
Work Programs
Residential
Recreation
Stepping Stones
Elderly Programs
Events

Donate Now
Job Openings
Links
Contact Us
Directions
Privacy Practices
Press Releases
Staff Phone Listing

Life Wisdom

By Kelly Smith

At first glance, the subject matter of wisdom and people with mental retardation would seem like an oxymoron. How can one measure wisdom in a population that is traditionally known to score below 70 when tested for intelligence? Isn’t it a fact that people with mental retardation have limited developmental abilities and therefore aren’t socially, emotionally or academically competent?

Imagine how I felt, as a former journalist, being asked to write an article on a topic that was totally abstract. I am accustomed to formulating stories based on facts and research, but how could I wrap my hands around a subject that many would say could not exist? After all, I had never experienced this "life wisdom" I was told about . . . or had I?

For me, and perhaps for you, the answer to the many questions I had in attempting to grasp and explain the mountainous pearls of wisdom often shared by people with mental retardation, lies in the definition of wisdom itself.

According to Webster’s New Collegiate Dictionary, wisdom is defined as: Accumulated or philosophic learning; knowledge; ability to discern inner qualities and relationships; insight; good sense; judgment; a wise attitude or course of action.

Based on the above findings, one could easily perceive that we are all quite capable of sharing wisdom throughout our lifetime. Certainly for as long as we walk the earth, we are prone to accumulating knowledge and judgment. But how many of us truly have the ability to open our eyes and recognize this unique wisdom when taught by those whom we least expect?

Bob’s Secret

For Dr. Stephen Becker, Executive Director of HARC, a brief encounter on his very first day at HARC touched him greatly. He was walking through the employment center to meet everyone when a client named Bob motioned to him as if to share a secret.

"I leaned over and he whispered, ‘I’m Jewish too’ and winked," said the Executive Director. "Being so new to Hartford, I had no idea anyone knew I was Jewish, but Bob was sensitive enough to perceive that as an issue, not to be made too public, and offered me his camaraderie."

To Dr. Becker, life wisdom is expressed by friends and participants at HARC in different ways. He defines these teachings as slices of compassion they have for others. Sometimes it’s knowing when to say nothing, and other times it’s reaching out to each other when help is needed. They have an uncanny way of knowing when and how to perk you up just when you need it the most.

"I think we all (HARC staff) have our stories, but sometimes we generalize people’s disability and we don’t embrace their gifts. There is a richness about their lives, and a grace they maintain despite their challenges. These people have gentle and charitable souls, and have very forgiving natures," he said.

The politics most of us can’t seem to escape in our everyday living doesn’t seem to exist in the realm of people with mental retardation. After listening to numerous staff and friends of these inspiring individuals, a sincere appreciation of people and relationships is quite evident. "When they like you, they like you," said Dr. Becker. "It’s not for wearing an expensive jacket or what you could buy for them."

The Guy with the Baseball Cap

Vicky Berke is a Family Support Coordinator and Legislative Liaison at HARC. She is one of the many staff members who have been at HARC for more than eleven years. As a professional in the field of developmental disorders, she has come to recognize a side of people with mental retardation that most of us would pardon. Lessons in life wisdom.

"You start in this field with one set of expectations: that people with mental retardation aren’t capable. And over time, they prove you so wrong. Your mindset totally changes," said Berke. After conducting a leadership series designed to help clients advocate for themselves, Berke saw first-hand how individuals with lower expectations and lower functioning abilities could, in fact, contribute to the class when it came to things like common sense.

"During one of the last sessions we were video- taping people individually and the group offered suggestions as to how their classmates could improve their skills. This one guy wore a baseball cap the whole time. He kept his head down, wouldn’t really make eye contact and we could hardly hear him since we couldn’t see his mouth when he spoke. I don’t think anyone was comfortable with how to help, or identify how he could improve," said Berke. "When it came time to critique him, a female classmate yelled out ‘take your baseball cap off - we want to see your face!’ And all of us staff were like, wow! How cool is that?"

Although the woman described above could not make the two-minute presentation to the group because of her limited verbal ability, she did in fact contribute to the group in a meaningful way, said Berke.

A Paradigm Shift

Stories like the one above happen every day.

"As caregivers, we used to tell people what, how, and when to do things best. Now, we are taking the time to find out what their wisdom suggests is right for them," said Shirley Boron, Assistant Director of Programs and Services.

Consumers of HARC’s services are frequently included on search committees when a position needs to be filled. When interviewing potential staff, for example, we are concerned that the very people who receive support are involved in selecting the support staff.

In one recent interview, a highly qualified woman failed to acknowledge the presence of the client on the interview team. "She didn’t even look at me the entire time," said the participant. "That made us very uneasy naturally. But it’s something that might have gone completely unnoticed if we had not had that valuable input," said Shirley. "Here was someone who would be working directly with our clients, and if she couldn’t even acknowledge the presence of a would be consumer, then the fit just isn’t there on the sensitivity side."

Our Silent Teachers

Consumer representatives also sit on HARC’s Board of Directors. This is a dramatic change from the belief, over the years, that people with mental retardation don’t have the ability to make decisions for themselves, let alone the right decisions.

According to Dr. Kirk Johnson, Clinical Director of HARC’s Behavioral Health Clinic, wisdom is very hard to describe but identifiable when we encounter it. "I know that I am in the presence of wisdom when I experience an individual as having confronted a difficult aspect of life, opened to it, and through their words and actions, indicated they are not defeated by it," said Dr. Johnson. "Wisdom means attaching the right amount of weight to the variables in one’s life. Not getting too burdened by this or that. Being able to say this is of value and that is not. It’s a combination of past learning and innate abilities," he said.

Examples of wisdom he’s experienced among his clients include seeing them be able to accept and allow for dependency and placing priority on relationships. This type of wisdom, he says, doesn’t always come in the manner we have come to expect.

"We tend to expect that someone who is wise will in some fashion try to share it. So we may think of wisdom as a tool or product that is marketed through lectures, retreats, or books. It is an acquisition that we then try to have and make ours," said Dr. Johnson

"People need to be reminded to look for the similarities and shared human qualities in those who are different from themselves. Whether that difference is one of race, ethnicity, religion, physical impairment, psychiatric illness or mental retardation, it is far too easy and convenient to simply say ‘they are not like me.’ If we look for the overlaps, the ‘I see myself in you’ opportunities, we will be enriched," said Dr. Johnson.

A Train Ride with Albert

When Charless Whitham, a Family Support Coordinator and Respite Care Program staff person, was charged with the task of taking Albert to a conference in Washington, D.C., she didn’t know what she was getting into. Albert is part of a national program known as Best Buddies.

"I’m not very good with trains. Albert and I devised a system where I would lead the way to the station and he would help by checking the paper (train schedule) and the track (number). On our return trip our train broke down. We had to get off in Baltimore. Albert doesn’t move fast because he has trouble with visual perception and we missed our next train. We were tired and hungry. Finally after about two hours I started to cry. Albert patted me on the back and said ‘Check the paper and the track. Check the paper and the track. Don’t worry, we’ll find our way.’ And we did," said Whitham.

"The people we work with possess a wonderful exuberance of life," said Whitham.

She and Albert also teach a class to future teachers at Central Connecticut State University twice a year. Whenever the professor asks Albert what the soon-to-be teachers should remember most about working with people with mental retardation, he says: "Remember that we are people and not numbers. We have a lot to say. Please listen to us."

When Paul got Bored

Arlene Smith, Family Support Coordinator and ten year veteran at HARC, remembers her earlier days when she worked with Paul as his Job Coach. She worked closely with Paul to find an appropriate job that would match his skills. During times such as these when they would spend some time together, Paul would quiz her about current events. Smith said he watched CNN constantly and always wanted to know for whom she was going to vote.

"One day, after a particularly successful session at a local kitchen job site, Paul turned to me and told me he was bored. He said he was tired of being in a kitchen and instead wanted to be in an office area where he could meet other people and get their ideas on world affairs," said Smith, laughing at the thought again. "I am so glad we had the kind of relationship that enabled him to speak up. I would never have known what he really wanted."

Ernie and the ArtSparks Group

For a lot of people, the creative process is difficult and intimidating. Diana Minisci Appleton, Coordinator of Public Education and instructor of the ArtSparks Group, knows all too well. The ArtSparks Group is a recreational art program within the Life Enrichment Program for HARC’s senior citizens.

When preparing for their first gallery exhibit, Appleton said, all of the people in the group were very excited about showing their work out in the community. "For the people in this group, the creative process seems to be less intimidating than for many. They just go with it and see what happens. They all enjoy painting and feel a real sense of accomplishment in creating their work. They don’t seem to have many preconceived ideas about what it ‘should look like’ when they’re finished."

"When the show was coming up, we were all talking about the excitement of having people see our work. Ernie was the only one who was rather quiet about it. When I asked him what he liked best about being in the exhibit, he responded, ‘I just like to make things. It feels good.’ I thought at that moment, what a very basic idea he had just expressed. But, simple as his statement seemed, he had really hit on the crux of what it is to be an artist," said Appleton.

Mary’s Concern for the People from Kuwait

Joyce Peters, HARC’s Director of Programs and Services recalls with a chuckle, how Mary, a support clerk at HARC’s employment site at the law firm of Robinson & Cole, showed her concern for the visitors from Kuwait who were being given a tour of that site. Mary had been seeing and hearing quite a bit about Saddam Hussein during the Gulf War.

After the introductions had been made, Mary asked the visitors if they were safe from "that man" she had seen on TV. She went on to say that the visitors could come and live with her and her cat, Fluffy, because they would be safe at her apartment.

Mary’s insight into an international crisis had been translated into a personal concern for the well-being of her guests.

Beatrice and her Buddy

For Beatrice and Albert keeping in contact by phone was a way of survival. Physically, each one was quite capable of caring for themselves. Socially, however, they relied on one another’s concern and good will to feel like a part of a friendship that had somehow evolved while they were participants in the Life Enrichment Program.

Together the two had come up with a system to check in on one another in their independent housing situations. If the line was busy for some time, or the other one could not be reached at all, each would call into the agency and contact a staff member to report the concern, and be sure someone looked into the situation.

"No one had facilitated the relationship," said Kandyce Aust, HARC’s Director of Public Relations and Development. "The irony is it was between two people who appeared dispassionate on the exterior, but demonstrated a deep level of caring for each other’s well being."

This type of wisdom is especially comforting to staff because of the clients’ unique ability to possess such good sense and sound judgment in a situation that could potentially be life-threatening. Beatrice and Albert had a keen ability to know when to help each other and utilize their resources.

Remembering Willis’ Friends

For Kandyce, the wisdom people with mental retardation share is one of a kind. "I think their wisdom is pure because they don’t have false yard sticks. For example, what kind of car you drive just isn’t important," she says.

Kandyce was also touched by Willis as he gave a tour to volunteers participating in United Way’s Day of Caring. Typically the day is reserved for employee volunteers who spend the day at a nonprofit agency to lend a hand with a project. While showing some individuals around his group home, Willis came across a bulletin board with photos of three close friends who had recently passed away. He explained that these were his friends and that they were in heaven together. "One, he said, was playing the harmonica up there like he used to for us here at home," said Kandyce. "These eight people in the tour group were just mesmerized with what he had to say."

Most of us would have continued past the photo display, embarrassed or uncomfortable to acknowledge the hurt to complete strangers in losing special friends. Not Willis. He shared that bit of wisdom to enrich not only their lives, but to enrich his own.

"I think if more people listened with an open mind, and an open heart, we’d recognize this life wisdom more often. Sometimes I feel selfish working with so many amazing people, because I feel like I gain so much more from the clients than I could ever give," said Kandyce.

All of us feel good when we give. Perhaps the more valuable gift, is to allow ourselves to receive.

The reward, as illustrated in the numerous heart-warming tales above, is clearly tenfold. Some of life’s truest words of wisdom can be found right here at HARC. And they are taught by qualified individuals - by our dearest friends.

Kelly A. Smith

Kelly A. Smith, author of our lead article, is a Marketing/Communications Associate at United Way of the Capital Area. As a former newspaper reporter with a degree in Journalism, she enjoys writing about stories that reach out and touch the heart. Ms. Smith truly thanks those who made this piece possible by sharing their experiences with such inspiring individuals. She hopes this article will encourage all of us to ‘stop and smell the flowers’ sometimes